Charlie Teo Foundation may collect personal information from donors, volunteers, fundraisers, people with or affected by brain cancer, event guests, corporate partners and sponsors,researchers and research institutions, grantees, suppliers, service providers and other supporters.
We may collect personal information from you in various ways, including in-person, by telephone, via our website or email, the internet, through social media or by mail.
Third parties might also collect personal information from you (for example, organisers of fundraisers) to provide to us.
Charlie Teo Foundation uses personal information in the following ways:
We would only provide your personal information to a third party if it is necessary to perform our activities (i.e.if you have specific dietary requirements, we would provide that information to the organiser of the event) or required by law including any COVID-19 rules.
Health information and other sensitive information
If you provide us with details of how you have been affected by brain cancer, including information about your medical condition, history andtreatment, this is considered health information. We will always seek your consent to the use and disclosure of such information, including using your story and image in our communications, social media and promotional material.
We may collect your personal information including:
your medical history including, where relevant, a family medical history;
your Medicare number and information about your privacy health insurance;
current medications or treatments used by you;
the name of any care provider, health service provider or medical specialist to whom we refer you back to or has referred you to us, copies of any referrals and reports;
test results and samples.
Information may also be collected about individuals who are not research participants when we make a record about a research participant. For example, when collecting emergency contact details or a family medical history.
From time to time we may collate and analyse statistical data from information we have previously collected. In these cases, the data will be de-identified and aggregated before it is disclosed to third parties.
Our website uses Secure Sockets Layer (SSL) certificates to protect your credit card information over the internet. We also encrypt the credit card details we store on our electronic cloud-based database.
Access to and correction of your personal information
At your request, Charlie Teo Foundation will provide you with access to your personal information that is held by us. We may, however, refuse a request for access in certain circumstances in accordance with Australian Privacy Principle 12.
If you consider the personal information that we hold about you is inaccurate, incomplete, irrelevant or out-of-date, please contact us so that we can correct the information.
For any questions or notices, please contact our Privacy Officer at:
Charlie Teo Foundation ABN 57 622 041 061
Phone: (02) 8880 8328
We will respond to requests within a reasonable timeframe.
Last updated March 2021